Biggest fears

Hello and welcome back to another blog! Today’s blog is going to be about my biggest fears.. some of my biggest fears would be losing my family, not being able to have a family of my own one day, not being able to provide for my self. These are some of my biggest fears. Feel free to comment what some of your biggest fears are if you are comfortable! Thank you all so much for reading and hope you have a great day!  

here are a few of my favorite things

Hello everyone and welcome to my blog! Today’s blog will be about me and some of my  favorite things like my favorite food, favorite music to listen to and tv shows…

My favorite television show is Friends, Grey’s anatomy, A million little things, riverdale and many more. I would say my favorite food would be a tie between Mexican and Italian. My favorite type of music would be country, pop and some rap music.

FUN FACT

Hello Everyone! Today’s blog will be a fun fact about Turners Syndrome. That fun fact is that girls with Turners syndrome have skeletal abnormalities. For example, my arms do not go straight when I stretch them out. Leave in the comments if you have turners and also have this abnormality. HAVE A GREAT WEDNESDAY!

Source: medicinenet.com

traveling

Hello everyone! i hope everyone is having a great Tuesday! Today’s blog is about traveling. I have been to Oklahoma, Massachusetts, Upstate New York, Hawaii, and Utah. There are so many places I want to go some of them being Paris France, Italy, Germany etc…Traveling has been a dream of mine since I was a little girl! I hope one day I will be able to travel and experience different cultures. These are some some of my traveling goals. leave in the comments one place you would like to visit one day!

this is me in front of the Independence Hall in Boston Massachusetts!

My heart condition

Hello everyone and welcome back to my blog! Today’s blog will be about my heart condition. To start I have bicuspid Aortic stenosis. That means that my aorta was not opening and closing properly so when I was 2 1/2 they went in surgically to repair it and they took my pulmonary valve and placed it where my aorta was and I now have a cadaver pulmonary valve. I have been going to a cardiologist my whole life and I have had many EKGS and echocardiograms and when I was younger I used to love the EKG because of the stickers. up until I was 16 I used to be ashamed of my heart condition but then I went to Camp Del Corazon and it changed my life in the best way possible! I have met so many amazing people who knew what I was going through and I still keep in touch with some people from camp and I can become a counselor very soon and am so excited.

Something new!

Hi everyone and welcome back to another blog! I want to apologize for the lack of posting due to the holidays but I just wanted to hop on here and and say that I have started a youtube channel! if you would like to subscribe its https://www.youtube.com/channel/UCAexXIGGCeYfNNxV0KbylUg and my first video is set to go live January 6th at 10:15 am pst.Hope you all had a great Christmas and a very happy new year!

Opening up about Turners Syndrome

HI everyone and welcome back to another blog. Today, we are going to talk about opening up to people about Turners Syndrome which for me personally is very hard. I only allow certain people to know that I have have Turners Syndrome. I feel like if I tell people they will look at me or treat me differently because I have a medical condition. To this day, I am very limited to who I tell about TS and its only people I trust like my family or my closest friends. One of the main reasons I started this blog was for me to open up and talk about Turners. I am hopefully going to the TS national convention next year and looking forward to meeting girls my age with TS and talking to them about their experience sharing their diagnosis of TS and seeing if we share some of the same experiences.

Hormone treatment

Today we will be talking about my personal experience with hormone treatment. It started with growth hormone injections which I HATED, getting shots was the worst but when I was about 8 years old insurance stopped paying for it and we could not afford it anymore so I am stuck at 5″2. When I was 17 I finally started estrogen treatment and that has been going good so far I am still on a very small dose so nothing much is really happening to my body which is okay but I wish I had a little improvement but I am being patient and just celebrating the little things like the fact that I am on Estrogen. The Doctor did not want to me start estrogen because she wanted to keep me off of it for as long as I can so that I can grow taller but I had enough of the waiting so my mom and I told the Doctor to put me on it and that I was happy with how tall I was becausebI am taller than the average Turners Syndrome girl and that was enough for me to be happy… remember that self love is the most important and that you are a miracle and to never give up!