Today we will be talking about my personal experience with hormone treatment. It started with growth hormone injections which I HATED, getting shots was the worst but when I was about 8 years old insurance stopped paying for it and we could not afford it anymore so I am stuck at 5″2. When I was 17 I finally started estrogen treatment and that has been going good so far I am still on a very small dose so nothing much is really happening to my body which is okay but I wish I had a little improvement but I am being patient and just celebrating the little things like the fact that I am on Estrogen. The Doctor did not want to me start estrogen because she wanted to keep me off of it for as long as I can so that I can grow taller but I had enough of the waiting so my mom and I told the Doctor to put me on it and that I was happy with how tall I was becausebI am taller than the average Turners Syndrome girl and that was enough for me to be happy… remember that self love is the most important and that you are a miracle and to never give up!
Hi everyone and welcome back to another blog!
Todays topic will be about fitting in and how it can be a struggle fitting in… in Turners it’s very common for a girl to look younger than she actually is… it’s a running joke in my family that I look twelve years old but in reality I am nineteen but instead of looking at the negative I choose to look at the positive which is that when I’m older and in my thirties it will be a blessing because I will look young… I have overcome this by help with my family and thinking positive! Remember that anything is possible and that you are a miracle!!
HI everyone I am so sorry I have not posted in a while but I just wanted to hop on here and give a little bit of an update! I finished my first college class with an 87% and We Thanksgiving was last week and I had my Family over for dinner and we had so much fun! and lastly I will start posting more I am looking to post once a week or once every two weeks!
thank you so much for the support and if you have not yet followed my instagram page its @life.with.turners Have a great day!
Hi everyone! Welcome back today’s blog will be a little life update and just what I have been up to these past couple weeks. First off I am moving to a new house in Las Vegas so I have been preparing for that. On Halloween weekend my family and I went to California for the weekend and had so much fun we went to Disneyland and my dad works for Twenty One Pilots so we were able to go to two concerts and at one of them I was able to meet the super cool band! Yesterday was my nineteenth birthday so we went out to dinner with family and had fun! but now its back to normal activities like school and work and finish getting ready to move this weekend!
Thank you so much for reading! hope you all enjoy and if you would like to have me write about a specific topic please comment on here or my instagram @life.with.turners
HI everyone and welcome back to another blog! Todays blog is an interesting fact and that fact is that Turners girls have kidney malformations and do not usually cause any problems but Turners girls can be more prone to urinary tract infections
thanks for reading and come back on Tuesday for another blog!
Hi everyone! Welcome back to another blog todays topic will be my work experience and what it was like for me to get a job. First off I started looking for one senior year of high school. I had applied for many jobs at many places like target, kohl’s, food places and many more. I finally got a seasonal part time job at Forever 21 and it lasted about two months and then I went on and enjoyed the rest of my senior year. In June after graduation my family moved to Las Vegas and applied to a lot of places here in Vegas and it took be three months to find a job out here. Now I am currently working at a movie theater and am really enjoying it! Even though it was extremely hard to find a stable job that I really enjoyed, it was worth the struggle.
Thanks for reading and have a great Monday!
Hi everyone and welcome to a new blog! todays blog will be about being short and things we have to deal with while being short
- Not being able to reach the gas pedal in the car and having to be so close to the steering wheel
- Having a step stool in the kitchen 24/7
- Being an arm rest for all your taller friends
- Not being able to ride some rides at amusement parks
- Personally having a 6″4 older brother and a 5″3 younger sister and me being 5″2
- Having to buy capri pants and having them land perfectly at the ankle
- Getting called shorty or small fry
HI everyone todays blog is a fact of the day!
That fact of the day is that a mathematics learning disorder called Dyscalculia is found in about 50% in all turners syndrome girls. Thank you for reading and hope you enjoy!
source: Turners Syndrome Global Alliance facebook page.
Hi and welcome back to another blog! the topic today is my surgery and doctor visits. To begin, as you may or may not know, I have bicuspid aortic stenosis and had surgery when I was two and a half. The surgeon told my parents that I will have to have another surgery in six to eight years but it has been sixteen as of June 2019. I have gone to a cardiologist my whole life and those appointments do not get any easier as I grow older. I have found an amazing camp called Camp Del Corazon and have met some of the most amazing people that help me through my doctor visits and the anxiety and nervousness I get when I go to the cardiologist. On top of the cardiologist I also see an Endocrinologist. I see the endocrinologist for hormone replacement. When I was younger I was on Growth Hormone injections and was on them till I was about 9 years old. Currently I am on estrogen and have been for three years and it has been a slow process. But looking forward I am excited to continue hormone therapy and to become a counselor at Camp del Corazon. Thank you for reading and remember that you are not alone in your struggles and YOU CAN DO THIS!!
Hi everyone it’s Emma! Welcome back! Today’s topic will be about school and how school was for me. To start, I went to a Catholic school from kindergarten to fourth grade until my parents found out I have some learning disabilities. I went to public school from fifth grade to eighth grade. Then I went back to a Catholic high school. I struggled with school a lot. I had a very hard time in middle school and went through a very rough period with my peers and knew some not nice people with a lot of stupid middle school drama. I just hated school because of my peers and the fact that I was in a lower math class than all my friends in middle school. I thought I was stupid because I could not understand basic algebra and needed a lot of help. I thought if people knew I was in that math class they would make fun of me and I would be judged. Then high school came around and I was able to attend the one I wanted to go to, which made me excited. That was even harder because it was a college-prep high school. I had a very tough time, I had to take summer school every other summer for Spanish but despite all of that I graduated high school in 2019 and I am a freshman in college and looking forward to becoming a Nurse. Even though I faced all these struggles, I was still able to do the thing that no one thought I could do, and that was graduate from a college-prep Catholic high school. If I can succeed through these difficulties, I know you can too. Thanks, everyone for reading and come back on Wednesday for a new blog!