Hello everyone and welcome back to my blog! Today’s blog will be about my heart condition. To start I have bicuspid Aortic stenosis. That means that my aorta was not opening and closing properly so when I was 2 1/2 they went in surgically to repair it and they took my pulmonary valve and placed it where my aorta was and I now have a cadaver pulmonary valve. I have been going to a cardiologist my whole life and I have had many EKGS and echocardiograms and when I was younger I used to love the EKG because of the stickers. up until I was 16 I used to be ashamed of my heart condition but then I went to Camp Del Corazon and it changed my life in the best way possible! I have met so many amazing people who knew what I was going through and I still keep in touch with some people from camp and I can become a counselor very soon and am so excited.
Hi everyone and welcome back to another blog! I want to apologize for the lack of posting due to the holidays but I just wanted to hop on here and and say that I have started a youtube channel! if you would like to subscribe its https://www.youtube.com/channel/UCAexXIGGCeYfNNxV0KbylUg and my first video is set to go live January 6th at 10:15 am pst.Hope you all had a great Christmas and a very happy new year!
HI everyone and welcome back to another blog. Today, we are going to talk about opening up to people about Turners Syndrome which for me personally is very hard. I only allow certain people to know that I have have Turners Syndrome. I feel like if I tell people they will look at me or treat me differently because I have a medical condition. To this day, I am very limited to who I tell about TS and its only people I trust like my family or my closest friends. One of the main reasons I started this blog was for me to open up and talk about Turners. I am hopefully going to the TS national convention next year and looking forward to meeting girls my age with TS and talking to them about their experience sharing their diagnosis of TS and seeing if we share some of the same experiences.
Today we will be talking about my personal experience with hormone treatment. It started with growth hormone injections which I HATED, getting shots was the worst but when I was about 8 years old insurance stopped paying for it and we could not afford it anymore so I am stuck at 5″2. When I was 17 I finally started estrogen treatment and that has been going good so far I am still on a very small dose so nothing much is really happening to my body which is okay but I wish I had a little improvement but I am being patient and just celebrating the little things like the fact that I am on Estrogen. The Doctor did not want to me start estrogen because she wanted to keep me off of it for as long as I can so that I can grow taller but I had enough of the waiting so my mom and I told the Doctor to put me on it and that I was happy with how tall I was becausebI am taller than the average Turners Syndrome girl and that was enough for me to be happy… remember that self love is the most important and that you are a miracle and to never give up!
Hi everyone and welcome back to another blog! Todays topic will be about fitting in and how it can be a struggle fitting in… in Turners it’s very common for a girl to look younger than she actually is… it’s a running joke in my family that I look twelve years old but in reality I am nineteen but instead of looking at the negative I choose to look at the positive which is that when I’m older and in my thirties it will be a blessing because I will look young… I have overcome this by help with my family and thinking positive! Remember that anything is possible and that you are a miracle!!
HI everyone I am so sorry I have not posted in a while but I just wanted to hop on here and give a little bit of an update! I finished my first college class with an 87% and We Thanksgiving was last week and I had my Family over for dinner and we had so much fun! and lastly I will start posting more I am looking to post once a week or once every two weeks!
thank you so much for the support and if you have not yet followed my instagram page its @life.with.turners Have a great day!
Hi everyone! Welcome back today’s blog will be a little life update and just what I have been up to these past couple weeks. First off I am moving to a new house in Las Vegas so I have been preparing for that. On Halloween weekend my family and I went to California for the weekend and had so much fun we went to Disneyland and my dad works for Twenty One Pilots so we were able to go to two concerts and at one of them I was able to meet the super cool band! Yesterday was my nineteenth birthday so we went out to dinner with family and had fun! but now its back to normal activities like school and work and finish getting ready to move this weekend!
Thank you so much for reading! hope you all enjoy and if you would like to have me write about a specific topic please comment on here or my instagram @life.with.turners
HI everyone and welcome back to another blog! Todays blog is an interesting fact and that fact is that Turners girls have kidney malformations and do not usually cause any problems but Turners girls can be more prone to urinary tract infections
Hi everyone! Welcome back to another blog todays topic will be my work experience and what it was like for me to get a job. First off I started looking for one senior year of high school. I had applied for many jobs at many places like target, kohl’s, food places and many more. I finally got a seasonal part time job at Forever 21 and it lasted about two months and then I went on and enjoyed the rest of my senior year. In June after graduation my family moved to Las Vegas and applied to a lot of places here in Vegas and it took be three months to find a job out here. Now I am currently working at a movie theater and am really enjoying it! Even though it was extremely hard to find a stable job that I really enjoyed, it was worth the struggle.