HI everyone todays blog is a fact of the day!
That fact of the day is that a mathematics learning disorder called Dyscalculia is found in about 50% in all turners syndrome girls. Thank you for reading and hope you enjoy!
source: Turners Syndrome Global Alliance facebook page.
Hi and welcome back to another blog! the topic today is my surgery and doctor visits. To begin, as you may or may not know, I have bicuspid aortic stenosis and had surgery when I was two and a half. The surgeon told my parents that I will have to have another surgery in six to eight years but it has been sixteen as of June 2019. I have gone to a cardiologist my whole life and those appointments do not get any easier as I grow older. I have found an amazing camp called Camp Del Corazon and have met some of the most amazing people that help me through my doctor visits and the anxiety and nervousness I get when I go to the cardiologist. On top of the cardiologist I also see an Endocrinologist. I see the endocrinologist for hormone replacement. When I was younger I was on Growth Hormone injections and was on them till I was about 9 years old. Currently I am on estrogen and have been for three years and it has been a slow process. But looking forward I am excited to continue hormone therapy and to become a counselor at Camp del Corazon. Thank you for reading and remember that you are not alone in your struggles and YOU CAN DO THIS!!
Hi everyone it’s Emma! Welcome back! Today’s topic will be about school and how school was for me. To start, I went to a Catholic school from kindergarten to fourth grade until my parents found out I have some learning disabilities. I went to public school from fifth grade to eighth grade. Then I went back to a Catholic high school. I struggled with school a lot. I had a very hard time in middle school and went through a very rough period with my peers and knew some not nice people with a lot of stupid middle school drama. I just hated school because of my peers and the fact that I was in a lower math class than all my friends in middle school. I thought I was stupid because I could not understand basic algebra and needed a lot of help. I thought if people knew I was in that math class they would make fun of me and I would be judged. Then high school came around and I was able to attend the one I wanted to go to, which made me excited. That was even harder because it was a college-prep high school. I had a very tough time, I had to take summer school every other summer for Spanish but despite all of that I graduated high school in 2019 and I am a freshman in college and looking forward to becoming a Nurse. Even though I faced all these struggles, I was still able to do the thing that no one thought I could do, and that was graduate from a college-prep Catholic high school. If I can succeed through these difficulties, I know you can too. Thanks, everyone for reading and come back on Wednesday for a new blog!
Hi everyone and welcome back! Today’s blog will be about driving. Driving has not been the easiest for me, I have struggled with Confidence behind the wheel, timing with yellow lights, turning and going in reverse this is all associated with some of my learning disabilities. I have failed both a permit and a behind the wheel test. I have recently started driving lessons and on the first lesson my confidence with driving went up a lot and will be scheduling two more lessons with an instructor and am hopefully going to get my license in November. I hope you all enjoy and stay tuned for more blogs! “Never say Never” -Justin Bieber
Hi everyone! Welcome back to my Blog! Today’s blog is a fun fact!
that fun fact is that Turners Syndrome Girls are about 4 feet 8 inches in height without growth hormone injections.
enjoy and stay tuned for my next blog post!
Hello, my name is Emma, I am 18 years old living in Las Vegas Nevada. I am living with a medical condition called Turners Syndrome. For those of you who do not know what Turners Syndrome is, its a chromosomal disorder found in only girls and it affects the X chromosomes in females, to read more about it click here https://www.turnersyndrome.org/about-turnersyndrome It has not been an easy road, My parents found out while my Mom was pregnant with me. When I was born the doctors originally thought I had trisomy 18, which is worse than Turners Syndrome. I have had a lot of doctors and still do have a lot of Doctors. The appointments have been hard for me and my parents. I also have Bicuspid Aortic Stenosis which required surgery when I was two and a half and have gone to many cardiologist appointments and they are not easy at all. The anxiety, the nervousness, the anticipation its hard to overcome but I have to be strong. I wanted to start this blog because I want to share my story and hopefully help other girls dealing with the same thing. Thanks and I hope you enjoy my blog.